Resources for Healthcare
Providers
caring for adults with Autism Spectrum Disorder (ASD)
Compiled by CON-DNP student Sarah Sakala, RN, BSN*
Anticipated graduation August 2020
*This student does not yet
have the DNP title and does not claim to be a doctor of nursing practice
Want
to be added as a provider, or have a resource to add?
Email sarah.sakala@knights.ucf.edu
Guidelines (where the guidelines provided were compiled from)
· National Institute for Health and Care Excellence (NICE):
o
www.nice.org.uk/guidance/CG142
· Australian Clinical Practice Guidelines:
· Canadian consensus guidelines:
· Vanderbilt Kennedy Center:
o
iddtoolkit.vkcsites.org/physical-health/health-watch-tables-2/checklist-autism/
Toolkits and Forms (for providers to
learn more)
· AASPIRE Healthcare Toolkit (includes AHAT) and worksheets/checklists
· Toolkit and education: University of California San Francisco Office of Developmental Primary Care
· Health Care for Adults with Intellectual and Developmental Disabilities – toolkit for primary care providers
o
vkc.mc.vanderbilt.edu/etoolkit/
· TEACCH Transition Assessment Profile Kit – Adolescent and Adult Transition Plan kit $49
Directories (of healthcare providers for referrals – see bottom of page for more)
· CARD Center at UCF – full directory of local resources and providers (adult & pediatric)
· Asperger/Autism Network – Online directories of professional services
o
aane.org
Recommended
Books (for
providers to learn more)
Attwood,
T. (2015). The complete guide to Asperger’s syndrome (2nd ed).
London, UK: Jessica Kingsley Publishers. (Available on amazon)
Durand,
V. M. (2014). Autism spectrum disorder: A clinical guide for general
practitioners. Washington, DC: American Psychological Association. (Available on amazon)
Hazen,
E. P., & McDougle, C. J. (2018). The Massachusetts General Hospital
guide to medical care in patients with autism spectrum disorder. [electronic
resource]. Springer International Publishing. https://link-springer-com.ezproxy.net.ucf.edu/book/10.1007%2F978-3-319-94458-6
Ferguson,
J. & Laurie, V. (2015). Peaceful, pain free and dignified:
Palliative and end of life care for people on the autism spectrum. A guide for
social care practitioners. London, UK: BILD Publications. (Available on amazon)
Wilczynski,
S. M. (2017). A practical guide to finding treatments that work for
people with autism. San Diego, CA: Elsevier Academic Press. (Available on amazon)
Other
support and education
ASD Resources for
Patients/Families
· AASPIRE / AHAT Healthcare toolkit | autismandhealth.org
o
Information about diagnosis, referrals,
legal/ethical, resources, and the AHAT Personalized Healthcare Accommodation
report tool to provide to your healthcare provider before a visit
· Autism
Speaks’ Transition Tool Kit (free) | autismspeaks.org
o
Helps families prepare for the
transition from adolescence to adulthood
· Autism Speaks Guide for Adults | autismspeaks.org/sites/default/files/2018-08/Adult%20Tool%20Kit.pdf
o Toolkit/guide for adults suspect of having or newly diagnosed with ASD
· Asperger/Autism Network | aane.org/resources/adults/
o National directory of specialists, support groups, social activities, couples coaching, interview preparation, independent living support programs (not many listed in Florida)
· Autism
NOW |
1-855-828-8476
o
Call center for answers and referrals
· Pathfinders
for Autism | pathfindersforautism.org
o
Search directory for resources
· Autistic
Self Advocacy Network (ASAN)
| autisticadvocacy.org
o
Books and guides. Welcome to the
autistic community.
· Navigating
College | navigatingcollege.org/
· Autism
Women’s Network (AWN)
| awnnetwork.org
· Reddit:
Aspergers Subreddit | reddit.com/r/aspergers
· Twainbow
| twainbow.org
o
LGBT-ASD social support
· Wrong
Planet | wrongplanet.net
o
Online community, discussion/tips/news
in autism, forums, articles, job markets, more
· Thinking Person’s Guide to Autism | thinkingautismguide.com
o Information about how to differentiate which autism organizations to support and trust
· Autism
National Committee | autcom.org
o
Advocacy for human rights, social
justice
· GRASP – Global and Regional Asperger Syndrome Partnership | grasp.org
o Community advocacy and outreach, peer support, education, information, referral services (membership required)
· Autism Spectrum Connection | aspergersyndrome.org
·
Trapped in Space – Social Communication
for Aspies | trappedinspace.com/social-communication/
o
Self-help guide with videos to help improve
social communication for the adult with Asperger’s, Social Communication Disorder,
or other social skill gaps
Local Groups and Support
Florida
(focus on
adult populations)
East Coast
THRIVE at University of Northern
Florida
Disability Resource Center, Room 1500,
1 UNF Drive, Jacksonville FL 32224
904-620-2769 | www.unf.edu/thrive/
Helping Enrich Autistic Lives (HEAL)
Advocacy and service
P.O. Box 140, Ponte Vedra Beach, FL
32004
904-716-4198 |
info@healautismnow.org | healautismnow.org
Easter Seals
Adult support, day programs, residential,
recreation, financial planning,
1219 Dunn Avenue, Daytona Beach, FL
32114
386-255-4568 | easterseals.com
The M.O.R.G.A.N Project |
Melbourne, FL | themorganproject.org/
Therapeutic activities/group for
parents of kids with disabilities
Brevard College Internship Program |
Melbourne, FL
Individualized, post-secondary academic, internship and
independent living experiences
3716 N. Wickham
Rd., Ste. 1, Melbourne, FL 32935
Brevard Asperger Support Group
Irene Mazloom |
407-823-2176
Promise in Brevard
Housing and employment for adults with
disabilities including those with ASD
4105 Norfolk Parkway, West Melbourne,
FL 32904
Promiseinbrevard.com |
321-722-7400 | promiseinbrevard@gmail.com
Surfers for Autism
Education, volunteerism, advocacy,
support
2201 SE Indian St. Ste H-16, Stuart, FL
34997
855-386-4273 |
info@surfersforautism.org | surfersforautism.org
Families Living with Asperger’s | Palm
Beach and Broward Counties
Support group 18+ for individuals with Asperger’s Syndrome
561-297-2023 ext 2 or
954-262-7147 | dadreon@miami.edu
Growing Minds Autism Programs |
Jupiter, FL | autism-programs.com
Exceptional Vacations – Boca Raton,
FL |
exceptional-vacations.com
High-quality vacation opportunities for individuals with developmental disabilities/special needs
New Directions for Young Adults – Boca Raton,
FL |
newdirectionsfya.com
Students with ASD – transition to
college and transition to independent living
Bright Steps Forward – Fort
Lauderdale, FL | brightstepsforward.org
Pediatric therapy
Family Network on Disabilities
Parent to Parent
100 S. Andrew
Avenue, Fort Lauderdale, FL 33301
954-765-6722 | findbrow@bcfreenet.seflin.lib.fl.us
Central Florida
CARD (Center for Autism and Related
Disorders) - multiple locations
card.ufl.edu (Fort Lauderdale, Fort Myers, Gainesville,
Jacksonville, Panama City, Pensacola, Tampa)
psy.miami.edu/card
(Miami) | 305-284-5264 |
npelzman@miami.edu
ucf-card.org
(Orlando/UCF) | 407-823-2176
autism.fsu.edu (Tallahassee, FSU) |
850-644-4367 or 800-769-7926
Autism Society
of America
|
Florida
Chapter P.O. Box 970646,
Pompano Beach, FL 33097 954-349-2820 |
Emerald Coast
Chapter 916 Lido
Circle East, Niceville, FL 32578 |
|
Jacksonville
Chapter 1526
University Blvd. W. #235, Jacksonville, FL 32207 |
Greater
Orlando Chapter 4743
Hearthside Drive, Orlando, FL 32803 |
|
Palm Beaches Chapter 2100 Clinton
Lake Drive, Delray Beach, FL 33445 |
Florida Gulf
Chapter P.O. Box
21105, St. Petersburg, FL 33703 727-786-4292 |
|
Miami Dade
Chapter P.O. Box 831405,
Miami, FL 33173 |
Broward
Chapter P.O. Box
450476, Sunrise, FL 33304 954-577-4141 |
|
Panhandle
Chapter 4148 N.
Cambridge Way, Milton, FL 32571 |
Volusia
County Chapter 904-789-0720 |
Pasadena Villa
Adult Residential Center
George
Kachmarik, MS, LMH
119 Pasadena Pl., Orlando, FL 32803
407-246-5250
Threshold
Residential
Programs for adolescents
P.O. Box 1110.
Goldenrod, FL 32733
407-671-7060, 321-303-4881
Threshold-center.org
Florida Lions Camp
Inclusive
residential camp for children ages 5-15; specially designed adult programs
Barbara Cage, Rob Cage
Lions of Multiple District 35, 2819 Tiger Lake Rd., Lake
Wales, FL 33853
863-696-1948 | lionscampfl.org
Central Florida Autism Institute
Terry Millican,
Exec. Dir.
934 Bonnie Dr., Lakeland, FL 33803
863-680-1396
Beacon College
College with
Programs for Students with Asperger’s
105 East Main St., Leesburg, FL 34748
beaconcollege.edu/
May Institute
Adult services, day rehabilitation
program, residential programs
Orange Park, FL, 32073
mayinstitute.org/adult-services/index.html
Pasadena Villa Network
Residential beds, treatment, community
625 Virginia Dr., Orlando, FL 32803
877-845-5235 | info@pasadenavilla.com | pasadenavilla.com
West Coast
Florida Association for Children and
Adults with Learning Disabilities
331 East Henry Street, Punta Gorda, FL
33950
813-637-8957
Advocacy Center for Persons with
Disabilities
2671 Executive Ctr. West, Suite 100,
Tallahassee, FL 32301
850-488-9071 |
800-350-4566 Spanish & Creole
| www.advocacycenter.org
Other
Join and search autism or Asperger’s for many local adult
groups focused on support, outings (many throughout Florida)
Family Support Groups (many listed)
parentingaspergerscommunity.com/public/491.cfm
Atypical Education Travel | atypicaltravel.org
Small group escort experiential learning
adventures across the globe for adults with disabilities (mainly ASD)
Specialist in law enforcement and
autism
Dennis Debbaudt, Private Investigator
2338 SE Holland St., Port St. Lucie, FL
34952
772-398-9756 |
ddpi@flash.net
Children and Adults with Attention
Deficit Disorders (CHADD)
Tallahassee, FL 32301
850-222-2628 | chadd.org
Florida Association of Speech-language
Pathologists and Audiologists
335 Beard Street, Tallahassee FL 32303
800-243-3574
Referral
Resources
Florida
(focus on adult
populations)
Psychology
Evaluation, diagnosis, treatment of
kids and adults
Christine Needham, EdD.
17597 Rockefeller Cir #2, Fort Myers, FL 33967
230-267-0887 or 239-292-2081
ASD Diagnosis/evaluation for adults
Dr. Patrick Gorman
136 Benmore Dr., Winter Park, FL 32792
407-644-7792
Developmental neuropsychologist
Sue Antell, PhD.
1001-D Atlantic Avenue, Fernandina Beach, FL 32034
904-321-2630 or
866-321-2630
Pediatric psychologist, adults welcome
Samantha Carella,
Psy. D., Director
19022 NE 29th Ave., Aventura, FL 33180
305-936-1002
drcarellaandassociates.com
Psychologist specializing in diagnosing and testing for
children and adults
Myles Cooley, Ph.D., ABPP
9121 N. Military Trail, Ste 218, Palm Beach Garden, FL 33410
561-694-0001 | drmylescooley.com
Specializes
working with adults
Stephen
Nassar, PSY.D.
3684
N Wickham Rd., #B, Melbourne, FL 32935
321-751-3636
Clinical
psychologist specializes in older teens, adults
Debra
Sloane, Brevard County
321-961-1825 |
djsloane@cfl.rr.com
Advanced Behavioral Care – counseling for adults
Deborah Phillips, LSW, MHC
4031 Dixie Hwy NE, Palm Bay, FL 32905
321-622-3222
Licensed Clinical Psychologist
Heidi Escoto, PsyD
PO Box 244592,
Boynton Beach, FL 33424
561-716-1496 | hbescoto@comcast.net
Marie T. Rogers, Ph.D, Psychologist
Treats children and adults
3650 N. Federal
Highway, Suite 209, Lighthouse Point, FL 33064
954-782-6461
Diagnostic
evaluations and therapy
Krista
Marchman, Ph.D
599 Celebration
Place, Suite 201, Celebration, FL 34747
321-559-1222 | drkmarchman.com/
George Lindenfeld, PhD, ABPP – Trauma Therapist
904-257-0780
Dr.
Melissa Fogle – consultations available – no insurance accepted
2737
W Fairbanks Ave, Winter Park, 32789-3314, FL
407-740-6838
Neurocognitive
consultants
Dr.
Robert Cohen
2180
W. State Rd 434, Suite 1106, Longwood, FL 32779
407-920-8321 | neurocognitiveconsultants.com
Evaluation/Assessment
and psychology services
Dr.
Ivan Fleishman
901
N. Stone Street, Deland, FL 32720
386-736-8337 | ivanfleishman.com
UCF
Psychology Clinic Psychology Building, UCF Orlando Campus, Orlando, FL
407-823-4348 | sciences.ucf.edu/psychology/psychclinic/
Sliding
Scale diagnostic assessment for children
No
ASD adult eval/assessment but they do provide treatment/therapy
Dano
Leli
500
N. Maitland Ave, Suite 110 Maitland, FL 32751
407-628-5354 | MaitlandPsychology.com
Psychiatry
Child,
Adolescent and Adult Psychiatrist
Ricardo
Bernal
8751
Commodity Circle, Suite 3, Orlando, FL 32819
407-226-2777 |
doctorbernal.com
Diagnostic
evaluations, Psychological assessment, Medication assessment
Vijaykumar Bhujang
5545
N Wickham Road, Suite 110, Melbourne, FL 32940
321-779-9838
Myrtho
Branch
1806
Towne Plaza Ct, Winter Springs, FL 32708
407-542-4946
Center
for Adult Psychiatry
721
W. Colonial Drive, Orlando, FL 32804
407-245-8501 |
Accepts Medicaid
Board
certified child, adolescent & adult psychiatrist
Rashesh Dholakia, M.D., MPH
251
Maitland Avenue, Suite 304, Altamonte Springs, FL 32701
407-675-3220 | orangepsychassociates.com
Esperanza
Behavioral Health
Dr.
Fredesvinda Jacobs-Alvarez, MD
7350
Futures Dr. #16, Orlando, FL 32819
407-226-3733
Harish
Kher
601
North Clyde Morris Blvd, Suite C, Daytona Beach, FL 32114
386-257-4777 |
Accepts Medicaid
Greater
Orlando Psychiatric Associates
Ramon
Martinez
1417
N Semoran Blvd, Suite 203, Orlando, FL 32807
407-206-1106
Jose
E. Quinones, M.D., P.A.
2252
Winter Woods Blvd #2010, Winter Park, FL 32792
407-681-6003
Orlando
Health Behavioral
Dr.
Marcial Serrano, M.D. 100 W. Gore St, Suite 405, Orlando, 32806
321-841-9340
Donald
Sherry
1315
SE 25th Loop, Suite 101, Ocala, FL 34771
352-854-7700
Sees
adults who have already been diagnosed with ASD
Syeda
N. Sultana – Bay Hill Psychiatric Associates, LLC
6068
S Apopka-Vineland Road, Suite 3, Orlando, FL 32819
407-903-9696 | orlandopsychiatrist.net
Resources statewide, including for
children:
Speech-Language, Reading
· For further
speech-language-communication resources, see
o
cfl.ucf-card.org |
click More under Resources ŕ page 39 for
Communication
Speech language pathologist,
pragmatics/social skills training (children and adults)
Karen Franco Communications, p.a.
1550 Madruga Ave. Ste 336, Coral
Gables, FL 32399
305-661-9525
Speech-language, couples and employment
counseling, adult and college-aged therapy
Professional Communication Services,
Inc. – Timothy Kowalski, M.A., C.C.C.
1401-A Edgewater Drive, Orlando, FL
32804
407-245-1026 |
mrtin@socialpragmatics.com
| socialpragmatics.com
Dr. Karen E. Crockett, SLP
2914 Busch Lake Blvd., Tampa, FL 33614
813-933-0455
Gynecology
Bradenton
East Integrative Medicine
6120 53rd St E, Bradenton, FL
(941) 727-1243
Dr.
Janie Geraci
1001 Beverly Dr, Rockledge, FL 32955
(321) 459-1192
Dr.
Mary L. Josey
508 S Habana Ave, Tampa, FL 33609
(813) 873-1426
Behavioral
Providers, Neuropsychologists, Medication Management, Allergists, Audiologists,
Cardiologists, Dentists, EENT, Family practice, Geneticists, Internal Medicine,
Adult specialists, and more Clinical Psychologists:
o
cfl.ucf-card.org
| click More under Resources